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Southend's Children and Families Information PointSHIP Adults
   

16 of 16 people found this review helpful

My little Boys struggle

By Nicola Keil

I first approached IASS in 2012 (formerfey Parent Partnership).  I was advised to do so by a Specialist Consultant at Great Ormond Street Hospital.   My son was diagnosed with Tourette Syndrome and like many other children the conditions (Co-morbid) that occured in varying degrees (OCD<ODD, ADD, Anxiety) made it so difficult to deciper what was purely behavioural and what was condition-linked. 

He was continualy being punished for things for which he had no control.  The School almost refused to acknowledge that any difficulties were linked to his condition and  over time i watched his sparke and any self esteem he had diinsh.  I also became depressed and felt so frustrated that I had no one that understood.  I myself am a strong individual, however, I was getting to the point where I felt so helpless, constantly trying to appeal to the school's better nature,, in disbelief,  that I was leaving my son every day in a place where neither he or I felt he was safe. 

I contacted IASS.  FINALLY SOMEONE LISTENED.

I was treated with respectt and my instinctive "gut feelings" as a parent were not once quetioned.  Over a couple of years I "picked up and dropped" the services of IASS as the problems with my son and school waxed and wained. Despite feeling guilty for this I was always greeted with the same positive regard which meant I ALWAYS  re-approached as things became difficult.  In hindsight it felt almost like a safety net.

When things became terrible for my son at school and for me (I had to leave my job)  There was not one single person on the planet that really understood what was hapening for me and my boy,  I again returned to my safety net and have since been given the most phenominal support i could ever have have got.  I know the review is long but I really do think it would be an injustce to the service and the individuals if i was to fail to let others know what they may be missing.

PROFESSIONAL BUT CARING

FIRM BUT KIND

KNOWLEDGEABLE BUT LISTENED

SUPPORTIVE BUT RESPECTFUL


I have never been forced to do anything.  I have been guided by suggetions and their knowledge.  i am still in the process of assesment for my boy and still working towards getting him what he needs to succed with school life and the national curriculum.  They have set up meetings for me and they have empowered me.  They have helped me to not cry every time I speak about my sons stuggles (especially in school meetings) :0)

I can't thank them enough and I can honestly say that I am confident that there is NO BETTER HELP than theirs for someone in my position.

I could actually go on all day but i won't,  They have tried to teach me to use 10 words in place of the 10 thousand I was using every time I recored and reported what was going on for my son.  Stick to the facts.....Clearly that one is still work in progress :0/

On a serious note they continue to focus me on what is factual withiut ignoring the emotional side.   That is hard as a parent and they acknowledge that.  They have enavled me to understand that my corresepondence needs to be mainly based on evidence. 

I WLL BE ETERNALLY GRATEFUL FOR THE PROFESSIONAL CARE THAT THEY ARE,  AND HAVE GIVEN ME. 


I DO NOT THINK I COULD HAVE RECEIVED ANYTHING LIKE THE LEVEL OF SUPPORT THEY  HAVE GIVEN ME EVEN IF I PAID  FOR IT.  OF THAT I AM CONVINCED.

The main lady that has helped me ( I wish I could say her name but its probably not allowed) has put me in touch with a  Tourette support group and I will be attending that tonight.  

Prior to contacting them I felt powerless and hopeless.  I would never have been able to work out what to do with regards to my sons schooling had it not been for them.  They have helped me to get help from other departments within the local authority and helped me to appropriately deal with the school issues to date. 

We are not quite there yet.  ard \there is still more work to be done but I strongly believe their  services should be promoted and I think theit their services  shoud be advertised because before I had problems I had never even heard of them. 

 

 

 

 

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